Taking care of yourself (as a parent) while your child is in the hospital

Although this article was written for NICU parents, it is definitely applicable to all of us transplant parents as well.  This very informative checklist from New York Presbyterian, Morgan Stanley Children’s Hospital is available for all. Read more (http://childrensnyp.org/mschony/nicu-taking-care-of-yourself.html)

The Gift of a Lifetime

Take an amazing tour through the process of transplant in several different views.  Even though these are all adult patients, this photo documentary highlights the fascinating trials and triumphs that many transplant patients face in their own personal journeys. The Gift of a Lifetime also has interactive models of the human body to demonstrate how … Continue reading “The Gift of a Lifetime”

Patient Waiting List

Ever wonder how many people are on the patient waiting list right now.  The U.S. Department of Health and Human Services and the Organ Procurement and Transplantation Network maintain that data which is openly available to the public (http://optn.transplant.hrsa.gov/latestData/viewDataReports.asp). You can define your results through options like region, center, age, organ and many more.  And … Continue reading “Patient Waiting List”

It’s summer… time to educate ourselves about protecting our transplant kids in the sun.

We all know that transplant patients have to take extra precautions in the sun.  They are far likelier to develop skin cancer than the greater population.  There aren’t many materials regarding this for pediatrics, but the ones that are available (http://www.ncbi.nlm.nih.gov/pubmed/15061845) conclude that the risk for children transplant patients is heightened just as it is … Continue reading “It’s summer… time to educate ourselves about protecting our transplant kids in the sun.”

Tips for Parents of Children With Organ Transplants

Transplant News for June 29th from 00:31: Tips for Parents of Children With Organ Transplants – WebMD covers the what to do after your child has a transplant. This article does a great job of covering basic medical and psychological things to consider for your child post transplant. I would have loved to have had … Continue reading “Tips for Parents of Children With Organ Transplants”

How to Pay For an Organ Transplant

Transplant News for June 27th from 05:09: How to Pay For an Organ Transplant – About.com has an tackles “How to Pay For an Organ Transplant”. Although most of this information will probably be giving to you by your transplant team at some point. It is good to know a few extra tips provided in … Continue reading “How to Pay For an Organ Transplant”

Kids who face multiple kidney transplants like Facebook

Transplant News for June 21st from 00:16: Kids who face multiple kidney transplants like Facebook- king5.com by Jean EnersenLiving life to extremes is what it’s all about for eighteen year old Casey James.”In the summer I go longboarding, ride BMX, and wakeboard a lot,” James said. In winter he’s a wildman on a snowboard. But … Continue reading “Kids who face multiple kidney transplants like Facebook”

Key step made in child organ transplants in Japan

Transplant News for June 17th from 04:20: Key step made in child organ transplants- Toyama University Hospital, where a boy under 6 years old was confirmed brain-dead, in Toyama on ThursdayTwo years after the revised Organ Transplant Law went into effect, organ donation from brain-dead children has taken a major but cautious step forward.The nation’s … Continue reading “Key step made in child organ transplants in Japan”

Transplant News for June 14th

These are my links for June 14th: Lab-Grown Vein Transplanted in 10-Year-Old Girl – ABC News– Scientists in Sweden are reporting a medical first: a vein grown in a lab for a 10-year-old girl using her body’s own cells.Doctors are hailing the step as a milestone in tissue engineering, a field in which doctors grow … Continue reading “Transplant News for June 14th”