Listing your child for transplant is one of the most frightening experiences a parent can feel. There are so many unknowns. So many questions. Transplant feels so foreign, like something other people go through. The truth is that with your child’s doctors help and advice, listing your child for transplant can be a little less scary. Transplant Living … Continue reading “Having your child listed for transplant”
Transplant News for July 18th from 04:49: Hunter Ratcliffe pursuing his dreams – Source: baynews9.com The amazing video story of a teen heart transplant pursuing his dream of playing high school football. His dedication and positive attitude are an inspiration to all transplant athletes.
The Children’s Hospital of Philidelphia (CHOP) has a terrific list of book recommendations for you and your child before or during hospitalizations. Please check out this excellent resource (http://media.chop.edu/data/files/pdfs/surgery-guide-surgery-helpful-books-to-prepare-your-child.pdf).
Great article from MedStar Georgetown University Hospital on how to prepare children of all ages for a hospital stay. This page even has a fun video for younger patients to explain what they might see while they are in the hospital. It also give a good checklist for parents on what to expect pre-admission and … Continue reading “Preparing Your Child for Hospitalization”
Although this article was written for NICU parents, it is definitely applicable to all of us transplant parents as well. This very informative checklist from New York Presbyterian, Morgan Stanley Children’s Hospital is available for all. Read more (http://childrensnyp.org/mschony/nicu-taking-care-of-yourself.html)
Take an amazing tour through the process of transplant in several different views. Even though these are all adult patients, this photo documentary highlights the fascinating trials and triumphs that many transplant patients face in their own personal journeys. The Gift of a Lifetime also has interactive models of the human body to demonstrate how … Continue reading “The Gift of a Lifetime”
Ever wonder how many people are on the patient waiting list right now. The U.S. Department of Health and Human Services and the Organ Procurement and Transplantation Network maintain that data which is openly available to the public (http://optn.transplant.hrsa.gov/latestData/viewDataReports.asp). You can define your results through options like region, center, age, organ and many more. And … Continue reading “Patient Waiting List”
We all know that transplant patients have to take extra precautions in the sun. They are far likelier to develop skin cancer than the greater population. There aren’t many materials regarding this for pediatrics, but the ones that are available (http://www.ncbi.nlm.nih.gov/pubmed/15061845) conclude that the risk for children transplant patients is heightened just as it is … Continue reading “It’s summer… time to educate ourselves about protecting our transplant kids in the sun.”
Transplant News for June 29th from 00:31: Tips for Parents of Children With Organ Transplants – WebMD covers the what to do after your child has a transplant. This article does a great job of covering basic medical and psychological things to consider for your child post transplant. I would have loved to have had … Continue reading “Tips for Parents of Children With Organ Transplants”
Transplant News for June 27th from 05:09: How to Pay For an Organ Transplant – About.com has an tackles “How to Pay For an Organ Transplant”. Although most of this information will probably be giving to you by your transplant team at some point. It is good to know a few extra tips provided in … Continue reading “How to Pay For an Organ Transplant”