Let’s talk about Centers of Excellence

Center of Excellence is a term well known to most transplant families.  It is defined in Wikipedia as ” a shared facility or an entity that provides leadership, evangelization, best practices, research, support and/or training for a focus area. ”  But for most of us it is just a list of the centers that we can … Continue reading “Let’s talk about Centers of Excellence”

Hand washing: Do’s and don’ts – MayoClinic.com

Hand washing: Do’s and don’ts – MayoClinic.com – The Mayo Clinic tells us how to do hand washing and hand sanitizer the right way. A good refresher with the school year starting and cold/flu season fast approaching. I would only add that we also have our children wash their hands when coming home from school. … Continue reading “Hand washing: Do’s and don’ts – MayoClinic.com”

Good Transplant Outcomes in Hypertrophic Cardiomyopathy

Good Transplant Outcomes in Hypertrophic Cardiomyopathy –Doctors Lounge FRIDAY, Aug. 17 (HealthDay News) Post-heart transplant survival does not differ significantly between patients with hypertrophic cardiomyopathy (HC) and those with other types of heart disease, according to a study published in the Aug. 15 issue of The American Journal of Cardiology.To elucidate the post-transplant prognosis for … Continue reading “Good Transplant Outcomes in Hypertrophic Cardiomyopathy”

Transplant social worker hearts her job – SFGate

Transplant News for August 4th from 03:38: Transplant social worker hearts her job – SFGate – Please take a moment to read through this touching article highlighting the amazing career of transplant social worker Mary Burge. She has seen transplant from its very beginning stages in this country and helped hundreds upon hundreds of patients … Continue reading “Transplant social worker hearts her job – SFGate”

CCF Sample IEP and 504 plan letters

Transplant News for August 3rd from 03:42: CCF Sample IEP and 504 plan letters – Even through the target audience for these samples are parents of cardiomyopathy kids, the information here is invaluable for any potentially medically fragile child. Provided within this pdf are sample letters to the school, doctor verification letters, individual health plans, … Continue reading “CCF Sample IEP and 504 plan letters”

Ellie Goldberg for Healthy Kids

Transplant News for August 1st from 04:54: Ellie Goldberg for Healthy Kids – This is a thank you letter written from a parent to an advocate. She thanks the advocate for helping her understand IEP and 504 plans for her daughter who is a kidney transplant recipient. She goes into great detail as to how … Continue reading “Ellie Goldberg for Healthy Kids”

Waiting to exhale (video)

Transplant News for July 23rd from 04:25: Waiting to exhale (video) – This video chronicles the journey of young Canadian Hélène Campbell, lung transplant recipient and donor awareness advocate. It is a series of clips of her journey pre- and post-transplant. The attached article is a riveting account of her fight for survival and subsequent … Continue reading “Waiting to exhale (video)”

Having your child listed for transplant

Listing your child for transplant is one of the most frightening experiences a parent can feel.  There are so many unknowns.  So many questions.  Transplant feels so foreign, like something other people go through. The truth is that with your child’s doctors help and advice, listing your child for transplant can be a little less scary.  Transplant Living … Continue reading “Having your child listed for transplant”