Transplant social worker hearts her job – SFGate

Transplant News for August 4th from 03:38: Transplant social worker hearts her job – SFGate – Please take a moment to read through this touching article highlighting the amazing career of transplant social worker Mary Burge. She has seen transplant from its very beginning stages in this country and helped hundreds upon hundreds of patients … Continue reading “Transplant social worker hearts her job – SFGate”

CCF Sample IEP and 504 plan letters

Transplant News for August 3rd from 03:42: CCF Sample IEP and 504 plan letters – Even through the target audience for these samples are parents of cardiomyopathy kids, the information here is invaluable for any potentially medically fragile child. Provided within this pdf are sample letters to the school, doctor verification letters, individual health plans, … Continue reading “CCF Sample IEP and 504 plan letters”

Ellie Goldberg for Healthy Kids

Transplant News for August 1st from 04:54: Ellie Goldberg for Healthy Kids – This is a thank you letter written from a parent to an advocate. She thanks the advocate for helping her understand IEP and 504 plans for her daughter who is a kidney transplant recipient. She goes into great detail as to how … Continue reading “Ellie Goldberg for Healthy Kids”

Waiting to exhale (video)

Transplant News for July 23rd from 04:25: Waiting to exhale (video) – This video chronicles the journey of young Canadian Hélène Campbell, lung transplant recipient and donor awareness advocate. It is a series of clips of her journey pre- and post-transplant. The attached article is a riveting account of her fight for survival and subsequent … Continue reading “Waiting to exhale (video)”

Having your child listed for transplant

Listing your child for transplant is one of the most frightening experiences a parent can feel.  There are so many unknowns.  So many questions.  Transplant feels so foreign, like something other people go through. The truth is that with your child’s doctors help and advice, listing your child for transplant can be a little less scary.  Transplant Living … Continue reading “Having your child listed for transplant”

Preparing Your Child for Hospitalization

Great article from MedStar Georgetown University Hospital on how to prepare children of all ages for a hospital stay.  This page even has a fun video for younger patients to explain what they might see while they are in the hospital.  It also give a good checklist for parents on what to expect pre-admission and … Continue reading “Preparing Your Child for Hospitalization”

Taking care of yourself (as a parent) while your child is in the hospital

Although this article was written for NICU parents, it is definitely applicable to all of us transplant parents as well.  This very informative checklist from New York Presbyterian, Morgan Stanley Children’s Hospital is available for all. Read more (http://childrensnyp.org/mschony/nicu-taking-care-of-yourself.html)