Waiting to exhale (video)

Transplant News for July 23rd from 04:25: Waiting to exhale (video) – This video chronicles the journey of young Canadian Hélène Campbell, lung transplant recipient and donor awareness advocate. It is a series of clips of her journey pre- and post-transplant. The attached article is a riveting account of her fight for survival and subsequent … Continue reading “Waiting to exhale (video)”

Having your child listed for transplant

Listing your child for transplant is one of the most frightening experiences a parent can feel.  There are so many unknowns.  So many questions.  Transplant feels so foreign, like something other people go through. The truth is that with your child’s doctors help and advice, listing your child for transplant can be a little less scary.  Transplant Living … Continue reading “Having your child listed for transplant”

Preparing Your Child for Hospitalization

Great article from MedStar Georgetown University Hospital on how to prepare children of all ages for a hospital stay.  This page even has a fun video for younger patients to explain what they might see while they are in the hospital.  It also give a good checklist for parents on what to expect pre-admission and … Continue reading “Preparing Your Child for Hospitalization”

Taking care of yourself (as a parent) while your child is in the hospital

Although this article was written for NICU parents, it is definitely applicable to all of us transplant parents as well.  This very informative checklist from New York Presbyterian, Morgan Stanley Children’s Hospital is available for all. Read more (http://childrensnyp.org/mschony/nicu-taking-care-of-yourself.html)

The Gift of a Lifetime

Take an amazing tour through the process of transplant in several different views.  Even though these are all adult patients, this photo documentary highlights the fascinating trials and triumphs that many transplant patients face in their own personal journeys. The Gift of a Lifetime also has interactive models of the human body to demonstrate how … Continue reading “The Gift of a Lifetime”

Patient Waiting List

Ever wonder how many people are on the patient waiting list right now.  The U.S. Department of Health and Human Services and the Organ Procurement and Transplantation Network maintain that data which is openly available to the public (http://optn.transplant.hrsa.gov/latestData/viewDataReports.asp). You can define your results through options like region, center, age, organ and many more.  And … Continue reading “Patient Waiting List”

It’s summer… time to educate ourselves about protecting our transplant kids in the sun.

We all know that transplant patients have to take extra precautions in the sun.  They are far likelier to develop skin cancer than the greater population.  There aren’t many materials regarding this for pediatrics, but the ones that are available (http://www.ncbi.nlm.nih.gov/pubmed/15061845) conclude that the risk for children transplant patients is heightened just as it is … Continue reading “It’s summer… time to educate ourselves about protecting our transplant kids in the sun.”